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    5 First Steps To Take After An Early-Breast-Cancer Diagnosis

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    Receiving an early-breast-cancer diagnosis can feel like a shock to your system, prompting a wave of emotions that can range from fear to sadness, and everything in between. While you’re trying to get your wits about you, know that what to do next is at the ready for you. Here we lay out steps to take toward survivorship. Early breast cancer is when the cancer has not spread past the breast and the axillary lymph nodes. It is also considered ductal carcinoma in situ (when cells lining the milk ducts become cancerous) and stage 1 (small local tumour) through 3a cancer (cancer in nearby lymph nodes). 1. Take A Breath And Centre Yourself“It takes time to process the information when you hear you have breast cancer,” says registered nurse Susan Brown, the senior director of health information and publications at the Susan G. Komen Foundation; a breast cancer organisation in the US. “You may have to hear the diagnosis more than once. You may want to ask the doctor to name and write down what they have found so far. You also may have to learn a new vocabulary, so take a breath.”READ MORE: 11 Symptoms Of Breast Cancer In Women That Aren’t LumpsBe gentle with yourself, and remember that an early-breast-cancer diagnosis is not a death sentence. “The five-year survival rate for stage 1 breast cancer is 100 percent,” says Dr. Shari Goldfarb, an oncologist at Memorial Sloan Kettering Cancer Centre. “The earlier you diagnose and treat, the better your outcome, and most women with stage 1 breast cancer are going to be cured of their cancer.”2. Educate Yourself With Reputable SourcesBoth experts we spoke to agreed that knowledge is power – just be careful where you’re getting it. For example, the first thing many women do is research breast cancer on the internet, but there’s a right and a wrong way to do that. “Don’t just go to Dr. Google, because there is a lot of misinformation out there,” Brown says. “Take time to gather reliable information.” One good rule of thumb is to look for reputable sources with .org or .gov at the end of the site’s web address, as these sources are usually most up-to-date, Dr. Goldfarb says.3. Keep A Journal Or Notebook For Your Thoughts And QuestionsEven before your first visit with an oncologist or a breast-cancer surgeon, consider writing down questions, such as:What type of cancer do I have?

    What stage is it in?

    What is my prognosis?

    What does treatment entail?

    What does it mean for my life?Keep the journal going between doctor’s visits, especially if you begin experiencing side effects from medications and other forms of treatment. “We can often relieve many of these symptoms, so the sooner you tell your doctor what you’re experiencing, the better,” Dr. Goldfarb says. Hot flashes, diarrhoea, constipation and nausea are all common side effects of cancer treatment and documenting your symptoms can help motivate you to reach out to your doctor if you’re experiencing any of them. “For example, if you get a mouth sore two days after chemotherapy, we can prescribe something to relieve it before you come back for your next visit, so you don’t have to suffer through it for another two weeks,” she says. “Don’t let things fester.”READ MORE: 8 Breast Cancer Myths You NEED To Stop Believing

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    4. Establish A Support System“There used to be a stigma with cancer, but not anymore,” Dr. Goldfarb says. “There is nothing you did to get it. You were simply unlucky and you’re going to need good support going through this.” Take some time to consider who will be your support system, whether that includes your partner, other family members, friends or colleagues – or all of the above.Too many women forgo telling their boss and coworkers of their diagnosis, but Dr. Goldfarb says it’s important to share the news with them, too, because you may find yourself calling in sick more or simply not feeling well at work. ”If people understand what is going on, they are more helpful and supportive,” she says.“There is nothing you did to get it. You were simply unlucky, and you’re going to need good support going through this.” —Dr. GoldfarbAnd even if your squad consists of just one or two people, having an advocate who can help you gather information and draft questions can take some of the load off you. “Perhaps they can attend appointments with you as a second set of ears, to take notes or ask questions that you may forget to ask,” Brown says.READ MORE: “I Conquered Ovarian Cancer And Breast Cancer At The Same Time.”Where To Find Support GroupsBuilding a support system also can include connecting with others who have been through a similar experience. “This can be through a support group that’s online or in person,” Brown says. “These groups share information and encourage members to advocate for themselves.”CANSA, for example has several different CANSA Support Groups; from WhatsApp groups, zoom, face-to-face and Facebook groups where patients, friends and family can find support and friendship and share information. You can find a full list of the groups as well as how to join here.Just remember to ask your doctor about anything you read or hear that concerns you, rather than take another person’s advice as fact. Brown likens this to announcing you’re pregnant, then hearing nothing but horrible labour and delivery stories. “If someone gives you something to think about, clear it up with your doctor right away so you don’t worry unnecessarily,” Brown says. “Another person may not even have the same type of cancer as you, or maybe they had it years ago, but since treatment is always changing, what they say may have no bearing on you.”READ MORE: What To Know About Breast Cancer As A Young Woman5. Consider Getting A Second OpinionAn early-breast-cancer diagnosis is a physical and emotional diagnosis, and you must feel comfortable with the care you’re getting, says Dr. Goldfarb. Even if the diagnosis and treatment plans end up aligning, many patients find a second opinion goes a long way toward helping them make peace with their diagnosis. “The first person you meet is not always the right fit,” Dr. Goldfarb says. “This is an important, serious diagnosis, but it’s also important to feel like you’re getting good care. If it’s not a fit with the first person, a second opinion can give you peace of mind.” Brown adds that asking for another expert’s opinion may not be necessary if you have a common type of breast cancer, but occasionally a person may have an unusual type of breast cancer, something that a pathologist doesn’t see very often. Even if the diagnosis and treatment plans end up aligning, many patients find a second opinion goes a long way toward helping them make peace with their diagnosis.Whatever the reason – even if it’s just that you’ll feel better if another doctor looks at your test results – the doctor or hospital where your biopsy was done can help you find another source. “Sometimes even within the same facility, you might find a different doctor,” Dr. Goldfarb says. “I see fewer patients as an oncologist, but I see them much more frequently, which is why it’s so important to find someone you connect with, keeping in mind that this is going to be a long-term relationship.”She suggests looking for someone who approaches breast cancer holistically: “A lot of emotions are involved. Even though early-stage breast cancer is likely to be cured, for you, it’s a traumatic experience.”READ MORE: My Experience With Breast Cancer, At Age 27Lastly…It’s impossible to control an early breast-cancer diagnosis and everything that comes with it, so try focusing on the things you can control. “Reading about it and talking about it are important,” Dr. Goldfarb says – because they will help remind you that most women diagnosed with early-stage breast cancer become survivors. “This is why regular mammograms and self-exams are important – they lead to earlier diagnoses.”The key, she says, is to stay positive and surround yourself with positive people. “It’s hard and it hits you at different points, but I am always amazed at how optimistic people can be even in difficult situations,” says Dr. Goldfarb. “It will help you get through the journey.”This article by Ana Pelayo Connery was originally published by Women’s Health US More

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      “I Conquered Ovarian Cancer And Breast Cancer At The Same Time.”

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      “You can decide to let your cancer diagnosis get the better of you or you can choose to fight. There was no other option for me but to fight,” says Robyn Frick, Teamhead Commercial Marketing for PUMA. And fight she did, when in January 2023 Robyn was diagnosed with both breast cancer and ovarian cancer. This is how she went into combat with “The Big C” and came out a champion.

      Being Diagnosed With Breast Cancer And Ovarian Cancer At The Same Time

      “With any diagnosis, hearing that you have cancer comes as quite a shock. This diagnosis would be my second, and little did I know it would be a double whammy,” recalls Robyn. During a 2023 routine check-up, doctors discovered the ovarian cancer she’d been diagnosed with in 2013 had come back. And while undergoing tests, they discovered Robyn also had breast cancer. She had two large lumps in her right breast which had not been visible during a mammogram 6 months prior.

      What’s The Treatment For Fighting Two Separate Cancers?

      “Fighting two different cancers at the same time is somewhat unique,” explains Robyn. “They both require different treatment plans that ideally coincide so one cancer isn’t left to its own devices but that in itself is tricky.”

      Usually, doctors have to make a decision; which cancer they will treat first. In an ideal (albeit rare) circumstance, if the two cancers share characteristics they could respond to the same targeted drug or chemotherapy plan. 

      READ MORE: 11 Symptoms Of Breast Cancer In Women That Aren’t Lumps

      How Common Is It?

      According to WebMD, researchers estimate around 1 in 20 people with cancer have another separate cancer at the same time. “At the same time” is defined as two tumours that occur within less than 6 months of each other.

      Robyn’s Treatment Plan For Fighting Breast Cancer And Ovarian Cancer

      After consulting with a panel of oncologists and surgeons, Robyn’s oncologist came up with the best treatment plan possible. They would tackle her ovarian cancer first – the chemotherapy would treat the breast cancer at the same time – then her breast cancer.

      Her oncology treatment plan included:

      Chemotherapy: 6 cycles of chemo (carboplatin and paclitaxel) which was administered every three weeks and took 6 hours per session.

      Mastectomy: The chemotherapy was followed by a bilateral mastectomy (and immediate reconstruction which she elected for)

      Radiation: Then 5 weeks of radiation with 5 sessions per week.

      A PARP Inhibitor: Before Robyn started with chemo, she consulted with a Geneticist. This was to determine if she carries one of the BRCA gene mutations, which she does – BRCA-1. This opened up the opportunity for her to take a PARP Inhibitor (a type of targeted cancer drug) for post-treatment support. She will take this for the next two years.

      “Alongside my oncology treatment plan, I have a holistic treatment plan which will continue for years to come,” she says.

      Her holistic treatment plan includes:

      Supplements: She takes supplements targeted at her specific cancer

      A special diet: This diet excludes wheat, gluten, sugar and dairy

      Rife Therapy sessions: Rife machines produce low electromagnetic energy waves similar to radio waves

      Vitamin C drips: IV drips quickly increase the levels of ascorbic acid (or Vitamin C) in your blood.

      Exercise

      Spirituality: Robyn is tapping into her spiritual side

      The Biggest Out-Of-Pocket Expense

      With Robyn’s particular cancer, she qualified for a drug called Lynparza – a PARP Inhibitor. In her first consultation with her oncologist, she mentioned this drug would become part of Robyn’s post-chemo treatment plan if she was able to upgrade her medical aid to one of the top plans.

      If not, she would be facing a monthly cost of roughly R90,000 for the next two years.

      “Thankfully I was fortunate enough to be able to do the upgrade, and that monthly cost when compared to the price of the drug is nominal,” she says. 

      READ MORE: My Experience With Breast Cancer, At Age 27

      Inspirational Words For Anyone Who Has Received A Cancer Diagnosis

      “You can decide to let your cancer diagnosis get the better of you or you can choose to fight. There was no other option for me but to fight. Was it hard? Absolutely! Having to deal with a second cancer diagnosis and questioning why it happened to me in the first place, would treatment work this time around, how severe was my cancer diagnosis, had it spread through my whole body? Constant doctor’s visits, undergoing tests, treatments, it becomes exhausting. Losing my hair, losing my breasts, those are two things that define who you are as a woman, right?”

      “But if you choose to fight, you know your hair will grow back, you know that you will have the option for reconstruction (should you choose to do so), and you know that life is about so much more than those things.”

      “Focusing on one day at a time, being present in the moment, the support and love from my family, friends, colleagues, my medical team, even a whole lot of strangers, has definitely made my journey and the bigger picture that little bit easier.”

      You Are More Than Your Diagnosis: 

      “I don’t want my cancer diagnosis to define who I am. While it has forever changed my life and I am grateful to have survived it, I view it as a small part of my journey here on this earth and so many other amazing things have happened in my life which need to be celebrated,” says Robyn.

      Advice For Those Currently Experiencing Breast Cancer

      Take It Step By Step

      “It may sound like a cliché but take one moment at a time – one minute, one hour, one day. This is a journey not a race, so be kind to yourself. You will feel like you again.”

      Rely On Your Circle

      Robyn suggests surrounding yourself with the people who make you laugh, smile and who see you for who you are. On the hard days, let them carry the weight for you. And on the good days, invite them to celebrate with you.

      Do Your Own Research

      Robyn says you should investigate alternative therapies which can live alongside your treatment plan. But she emphasises that you make sure it is done with someone who specialises in cancers. “I have my wing chick and honestly could not have done this without her by my side – I am beyond grateful for her, her knowledge and her passion to find a way to cure cancer,” she says.

      READ MORE: 8 Breast Cancer Myths You NEED To Stop Believing

      Advice Everyone Should Heed About Breast Cancer

      If someone in your immediate family has breast cancer and tests positive for the BRCA 1 or 2 gene mutation, it is recommended that you get tested as well, Robyn emphasises. According to her, you would rather be equipped with that knowledge and take the necessary preventative measures should you test positive.

      “Had I done the gene test after my first diagnosis, I would probably have had a bilateral mastectomy and prevented my current breast cancer diagnosis,” she reflects.

      She highlights that you should really get to know the ins and outs of your body and trust your gut if you think something is amiss.

      How Fighting Breast Cancer And Ovarian Cancer Has Changed Robyn’s Life:

      “Well, first of all, I have a new set of perky boobs and a flat tummy,” she says. Robyn chose DIEP Flap surgery as reconstruction is done immediately and would eliminate the number of operations she would need to undergo had she selected implants. “My plastic surgeon was also very pro this surgery,” she says.

      Thankfully, she was a good candidate for a DIEP Flap which is a type of reconstruction that uses your own tissue to create a new breast after a mastectomy. They used Robyn’s abdominal tissue to create new breasts, which took around 9 hours as it is such an intricate surgery.

      The New Normal:

      You look at those around you who don’t have cancer and just want to feel ‘normal’ again, as you perceive them to be. But you soon realise this is your new normal and that life can’t go back to how it was before – you were given a warning, take heed of it and develop the skills to reduce stress, practice mindfulness, change your diet, set boundaries and so on. It does take daily practice though.”

      “I have only recently completed treatment, so I am still adjusting to what life looks like outside of daily treatments and doctor’s visits, but one thing it has definitely done is made me slow down and focus on today. Being diagnosed with cancer opens your eyes to what is important in life – prioritising time spent with family and friends, taking the time to listen to the sound of the waves crashing, the wind blowing through the trees, the sunsets and the moon rising – life is about the simple things we so easily take for granted,” she says. More

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      8 Breast Cancer Myths You NEED To Stop Believing

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      Ah, October… The time of year when almost every tree is swathed in pink and the term “breast cancer” is in your timeline more often than a Kardashian. And while awareness is incredibly important – regular check-ups and a healthy lifestyle are key to combating cancer – a flurry of information also creates room for confusion.

      In the world of science, it can take years of research and studies on large numbers of people to get a clear picture of what can and can’t increase or decrease your risk. That’s why you need to be extra careful where you get your information from. Here, we bust eight common myths and uncover the truth.

      Myth#1: Younger women are becoming more and more susceptible.

      Truth: The older you get, the more at risk you are for any cancer – not the other way round, says Dr Melissa Wallace, head of research at the Cancer Association of South Africa (CANSA). “The majority of breast cancer patients in South Africa and abroad have typically been and still are women between the ages of 50 and 70 years,” says Dr Justus Apffelstaedt, a specialist surgeon with a particular interest in breast, thyroid and parathyroid health management. So why older women? It’s not entirely clear, but research has shown that it may be a result of the accumulation of age-associated changes in a biochemical process that helps control genes.

      Myth#2: Chemotherapy is the MVP of breast cancer treatments.

      Truth: “The most effective way to treat breast cancer is with a multi-disciplinary approach, combining a number of treatment options that include surgery, radiation, chemotherapy and hormonal and biological agents,” says Apffelstaedt. The right treatment for you will depend on the type and stage of cancer and how far it has spread. “Treatment can consist of surgery, radiotherapy, chemotherapy, hormone therapy or biological or targeted therapies, which are new drugs that work differently to chemotherapy. A patient may have one of these treatments or a combination,” says Wallace.

      Myth#3: If you’re a smoker, you’re automatically at risk for breast cancer.

      Truth: Hate to break it to ya, but if you’re smoking, you’re at risk for around says Wallace. But that’s not the end of the story. “Many women will not necessarily increase the risk of getting breast cancer by smoking, but there is a subset of women with a specific genetic make-up that prevents them from detoxifying cancer-causing chemicals in cigarette smoke efficiently,” says Apffelstaedt. Those women do indeed have an increased risk of breast cancer when smoking. Places like 3×4 Clinics and DNAlysis can help you find out if you’re among them– but quitting is still a better option.

      READ MORE: 11 Symptoms Of Breast Cancer In Women That Aren’t Lumps

      Myth#4: Mammograms are painful.

      Truth: It shouldn’t be painful, but a little discomfort is normal. Plus, knowing the state of your boobies should for sure outweigh any temporary unease.

      Myth#5: Mammograms are not a big deal in breast cancer treatment.

      Truth: Not all mammograms are created equal. When it comes to screening for BC, you want the best tech available, including an image produced by a mammogram specialist radiographer.

      “High-quality breast imaging will detect about 95 percent of all breast cancers. In such centres, women whose breast cancer is detected at screening will have the same survival chances as women without breast cancer,” says Apffelstaedt.

      Myth#6: It doesn’t make a difference where you’re treated.

      Truth: “There can be a variation across facilities and provinces in terms of waiting periods for diagnosis and then waiting periods for accessing treatment,” says Wallace. The longer the waiting period, the worse the prognosis, since early treatment and detection are key. “In certain parts of the country, patients are experiencing unacceptable waiting periods to access treatment. CANSA is working hard to do what we can to address this at a national level,” she says. If you’re among those waiting, contact CANSA on advocacy@cansa.org.za.

      READ MORE: My Experience With Breast Cancer, At Age 27

      Myth #7: It’s best to remove the whole breast when you have breast cancer.

      Truth: A tumour in the breast will not kill you. What will? The spread of cancer to the brain and lungs, says Apffelstaedt, Wallace agrees. “Whether or not the breast will be removed is entirely dependent on the type of breast cancer, the stage and how far it’s spread.” Plus, says Apffelstaedt, breast cancer often spreads to other areas early in the course of the disease, so a mastectomy won’t guarantee a better survival rate than breast-conserving therapy.

      Myth #8: You’re more likely to get breast cancer after a breast augmentation.

      Truth: “It may be hard for the doctor to see certain parts of your breast,” says Wallace. “The X-rays used in mammograms cannot go through silicone or saline implants well enough to show the breast tissue under them. This means that part of the breast tissue can be hard to see on a mammogram.” But studies show that women who undergo breast augmentation surgery and have breast implants are no more likely to develop breast cancer than women who don’t, says Apffelstaedt. More

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      My Experience With Breast Cancer, At Age 27

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      Model Amber Denae Wright tells about her experience with breast cancer, having been diagnosed at the age of 27.

      Discovering a lump

      In March of 2020, literally two weeks before we went into hard lockdown, I got out of the shower one evening and I felt this really large lump on the right side of my breast. I hadn’t noticed it before. I was shocked by how big it was. It was on the right-hand side and thankfully close to the surface.

      As a teenager, I had been diagnosed with fibroadenomas, which are non-cancerous lumps that are quite common in young women. When I felt the lump, I thought that’s what it was. I had been told that they can grow and change. Sometimes, they need to be removed. But knowing that I didn’t want foreign things in my body, I immediately phoned my gynae and booked an appointment.

      That appointment got cancelled because we then went into a hard lockdown. Throughout that time, I had this thing constantly bothering me. I was very aware of it the whole time. It was causing a lot of pain. It was right where your bra wire catches. I fully believed that it was a fibroadenoma. I never even for one second imagined the big C word.

      The diagnosis

      When I was referred to a breast surgeon, he examined me and said that the way it felt and moved felt just like a fibroadenoma. He however recommended not going in for the surgery immediately, given the risks of contracting COVID in the hospital. I took that recommendation and another two months went by. Eventually, it caused me a lot of pain. I was struggling to sleep at night and struggling to complete workouts with my sports bra catching it. I eventually elected to do the surgery in August, five months after finding the lump.

      They removed the lump and sent it away for testing. A week later, I went back for a follow-up appointment. Everything felt very normal but then he called me into his office and started by asking me when I had found this lump. He said I’d shocked them all because, as it turned out, the lump was cancerous.

      I’ll never forget that moment for as long as I live. They were words I never ever, even for one second, imagined hearing, having breast cancer at age 27. The doctor immediately started to go through my treatment plan, the type of diagnosis it was, and the rest. I felt like I was watching this whole scene play out like I was outside of my body because it was too much. And then he started to talk about all of the treatments and he said the words ‘chemotherapy’. Once he said those words I was like, ‘This is actually real’. And I immediately just started to cry. I was completely overwhelmed.

      The treatment

      From that point on I was catapulted into 1001 different appointments, from scans to blood tests. I went straight from there for an ultrasound and the next day, I met with my oncologist.

      Given that my husband Nick and I don’t have kids yet, our first port of call was to preserve my fertility (which can be affected by chemotherapy). We did fertility treatment and froze embryos. This involved hormone injections, regular scans at a fertility facility and the harvesting of my eggs. It was the craziest few weeks of my life. Once the embryos were frozen, it was time to start chemotherapy. 

      My chemotherapy treatment was 16 rounds, over five months. Two weeks after my first chemo session, my hair started to fall out. It was one of my biggest fears. Every day I’d wake up, there was more hair on my pillow and more hair on my floor and every coat that I wore. It was all over me and it became very overwhelming.

      Eventually, it got to the point where my husband had to help me shave it off. It was a moment I never pictured going through in my life.

      Amber in treatment

      My life with breast cancer

      Initially, I was determined to keep up with everything I had been doing: working full-time, doing workouts and staying healthy. I had started doing Raise the Barre, an online barre class, during the lockdown. Before I’d gone in for surgery I was literally feeling my strongest, fittest, healthiest self. One of the toughest things was watching that slowly slip away as I got weaker and wasn’t able to train as much.

      During chemotherapy, for the first couple of weeks, when I still had energy, I was trying to train as much as I could. But chemo weakens you over time. I had debilitating headaches and couldn’t take too many painkillers because my organs were already under so much strain from the chemo. At about two or three o’clock, on some days, I would just crash and I literally felt like I couldn’t keep my head up. Because of all this, I decided to leave my job and focus on fighting the cancer.

      I also sought out therapy to help me maintain a positive mental state throughout. That helped me a lot because there are a lot of dark, hard thoughts that you don’t want to burden other people with.

      Amber ringing the bell after the last chemo treatment

      My surgery

      After chemo was done it was time for surgery. Because I didn’t test positive for any of the cancer gene mutations, I elected for a lumpectomy, where the lump and surrounding tissue were removed. When they operated on me the first time to remove the lump, they were operating as if it wasn’t cancer, so they didn’t do what they would normally do, which is cut around it and take all the tissue and the tumour out.

      They ended up taking out a lot of tissue and had to reduce the left breast to match the right. It ended up being a massive surgery. I also underwent 5 weeks of daily radiation and I am currently on 5 years of hormone treatment (Tamoxifen and Zolodex).

      Finding remission

      In October 2021, after all my active treatment was completed, I had an MRI which was all clear and confirmed that I was in remission. During my cancer journey, I felt like I was in survival mode, trying to get through every single day, and so when all of my treatment was done, I had a lot of emotions to work through and mental healing to do.

      Although my life looks very different now and although I will need to go for regular check-ups and scans for the rest of my life, and although I have needed to make changes and sacrifices to my lifestyle, there has been so much good that has come from this difficult journey. It made me a better person and helped me to become more confident in who I am and it made me realise how much I have to be grateful for.  

      I have been given a fresh start and I now know that I can do and be whatever I want to be because I proved to myself and everyone around me how strong I am. I am so grateful for my life and the people I have been blessed with  

      I’ve really tried to embrace this new version of myself and navigate all that comes with the cancer aftermath. My life is different, but it’s beautiful and I’m so blessed to be here.

      Amber now, cancer-free More

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      Mastectomy Bras Cost A Fortune But Here’s How You Can Help Women Who Can’t Afford One

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      Bras are pricey. Whether you’re an A cup or beyond, finding the right bra that offers great support, is comfortable and doesn’t break the bank — can seem impossible. Now imagine doing this after you’ve battled breast cancer and have to buy a mastectomy bra. A good quality mastectomy bra costs over R1000 and prosthesis […] More